BTW, just so you know MY bias, I spent about 20 YEARS going to chiropractors, massage therapists, and Osteopaths for treatment until FINALLY I couldn't move my hands anymore and was in so much pain that I couldn't sleep.
I went to one of those evil, knuckle-dragging, devil-possessed MDs and, lo and behold, after about 20 minutes of surgery, I felt better than I had in TWENTY YEARS. Unfortunately, due to the length of time I went untreated I did irreversible harm to the nerves in my arms. Consequently I have little sensation in my hands anymore, and tend to drop things more often than I used to.
I also watched my uncle slowly morph into an unrecognizable, twisted blob of humanity due to RA. He tried all the alternative stuff and those practitioners fed on him unmercifully. My sister is battling RA as well, and I'm starting to show symptoms myself. So I'm not a stranger to the ailment. I'm just not willing to pay somebody to perform pointless procedures on me in the expectation that "Well, it can't hurt!" Sorry, but it CAN, and DOES - everyday.
[Yes, it does - some people will buy the snake oil without checking the alternatives - such as precriptions, etc. I don't believe any of the posters here, so far, have said, "Don't go to a doctor." In reviewing their posts, they're sharing what's worked for them. If it didn't work or doesn't work - why recommend it?]
And no, the fact that I can have an opinion doesn't make me a doctor. The folks that seem to favor the altrenative regimen get a free pass from you on that count, though (it seems).
[And likewise - I am not a clinical professional, even though I do work in healhcare. I have my experiences to share and what I've learned. It's been the worst uphill battle - painful physically and emotionally. I've hated every freakin' moment of it - wished I'd die somedays, really, if I didn't have a lot to live for. That's not me being a martyr - just honest. As you know, it suxs! But for me, the side-effects of the medicines I was offered were worse than the condition - I'm not willing to pay that price for the little comfort I'll receive from them - AT THIS TIME. That's me. Many of the posters here who have posted on this have said they went a clinical route - from their inital visits, to their testings, to their diagnosis, treatments, etc. But all have basically said it wasn't enough - they looked for other options. Whatever it was... ]
My apologies if my first counter post seemed sarcastic - I didn't intend for you to take it that way. I don't agree with you, based on my experiences, etc. That's all. I think you took some things to extremes, now I guess I understand why.
Just bumping to the top to see if anyone has new info, thoughts, etc.
I am now on iinjectable methotrexate, enbrel, and just got approve for remicade to replace the enbrel. Went to a nutritionist for additional diet change recommendations in hopes of avoiding the remicade as that is an infusion treatment that I have to sit hooked up to an IV for a couple of hours per week.
I was extremely sick and bedridden for about 10 years - give or take. I did good to get out of bed to go to the bathroom or go sit at the table to eat meals. I couldn't always do laundry - when I did I would wash one day, dry the next day and fold the day after that. Dusting was non-existent, vacumming was once a month. I did dishes every day - I thought if I could do that then the world was all right and I might not die. I was ill and I was ill all the time and for a long time.
I was like a lot of people on this thread - I tried everything known to man. I went to MDs, Naturalpaths, Preventative MDs, Endochronoligists & Specialists in KC, Topeka and Emporia. I tried Homeopathics, Supplements, Chiropractors, Massage, Colonic Therapists, and some other really weird alternative therapies. When you are that ill you try almost anything.
After much research I came to believe that the massages and colonics probably saved my life. The massage moved the toxins and the colonics took them out of my body. Later on a doctor told me it was probably the only thing that kept me alive for many years.
I think I had Chronic Fatigue and Fibromyalgia but I've never found out what caused it or how I got it. I don't know if I had RA or not but I could barely sit down, stand up, lie down or get up. My husband would have to help me sit down and get up from the stool, chair or bed. My knees, one of my fingers in my right hand, my left elbow, and right shoulder hurt so bad I could barely function. I didn't go anywhere except to the doctor's office and I didn't do anything. I didn't have a life and I can't even stress that part enough. I said all that to give you the background that I was VERY sick and really hurting.
Then one day a friend of mine gave me some information about glyconutrients. First of all I'm not selling anything!! You can either go to your local health food store and buy them or google to find companies that sell the product.
Your body uses over 200 sachharide sugars (chemical carbohydrates). They work with various parts and organs of your body. The 8 chemical carbs in the Glyconutrients are the specific ones that deal with the immune system.
Within 2 weeks of taking the glyconutrients I noticed a difference. I felt a little better and not so desparetly ill. I was still ill but I didn't feel like I would die every day. Little by little I began getting my life back. My energy came back and the pain subsided and I was able to start doing things I did before I became ill. I could clean my closets, vacummed, swept, cooked, did laundry in 1 day, did the grocery shopping again. My husband got HIS life back again too. Before I got ill we did everything together, then when I got sick he had to do almost everything. Now we do things together again. Within 6 months I led a pretty normal life and within a year no one would have known I was so despartely sick for so long.
Now, I am going to school to become a massage therapist, an EFT practitioner, a breathing coach and a Nutritionist. I scrapbook, do beading, teach Hebraic dance and exercise. My husband and I do stained glass work together. I cook, clean, vacuum, dust, grocery shop and am able to spend time with my grandchildren again. We have a fellowship in our home now and I run a Recovery Program for women who are addicts, abused and codependents. I travel and have a wonderful life again.
I do have to be faithful in taking the glyconutrients to feel good. To me it's no different than the diabetic taking their insulin or people who have allergies having to take their allergy medicine. If I take the glyco's I stay healthy and have energy. If I don't then I feel sick and my fatigue comes back. The doctors were never able to diagnose what was wrong with me. They wanted to help me but they didn't know what was wrong with me or how to help me.
If you are interested in learning about the immune system and how the glyconutrients work with it then you can google or go to e-bay and do a search for a CD called, "Sweet Language of Life". It explains the immune system, how it functions and how and why it breaks down when it doesn't have what it needs. It explains what glyconutrients do for the immune system. It's one of the best health DVDs I've ever seen.
Good luck and I hope you at least try the glyconutrients. Do your research to find a reputable company - as with any product you have your shisters. And Glyconutrients are not a one size fits all product - you have to find what works for you. Some people can take a little and see results in a very short time. For others it takes more product, and/or more time. You have to work with it to see what works for you. I take 2 teaspoons a day - 1 in the a.m and 1 in the p.m. - every body is different so you have to find what works for yours.
Just bumping to the top to see if anyone has new info, thoughts, etc.
I am now on iinjectable methotrexate, enbrel, and just got approve for remicade to replace the enbrel. Went to a nutritionist for additional diet change recommendations in hopes of avoiding the remicade as that is an infusion treatment that I have to sit hooked up to an IV for a couple of hours per week.
Will you still have to take the methotrexate as well? I thought Remecade was a once monthly or even bimonthly drug. I have a co-worker who has a daughter on it. She has Crohn's disease. She goes in monthly for the infusion.
Janet I sent you info to your e-mail addy you supplied. Belle I sent you info to your message center here. Like I said I don't sell it but I provided you info of where you can go to get product information on glyconutrients and phone #s to call to order. If you have any problems then message me or e-mail me back. Good luck and if you decide to get it let me know how you are doing on it.
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ChasUFarley
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Scout Finch02
Just bumping to the top to see if anyone has new info, thoughts, etc.
I am now on iinjectable methotrexate, enbrel, and just got approve for remicade to replace the enbrel. Went to a nutritionist for additional diet change recommendations in hopes of avoiding the remicade as that is an infusion treatment that I have to sit hooked up to an IV for a couple of hours per week.
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Edi
I was extremely sick and bedridden for about 10 years - give or take. I did good to get out of bed to go to the bathroom or go sit at the table to eat meals. I couldn't always do laundry - when I did I would wash one day, dry the next day and fold the day after that. Dusting was non-existent, vacumming was once a month. I did dishes every day - I thought if I could do that then the world was all right and I might not die. I was ill and I was ill all the time and for a long time.
I was like a lot of people on this thread - I tried everything known to man. I went to MDs, Naturalpaths, Preventative MDs, Endochronoligists & Specialists in KC, Topeka and Emporia. I tried Homeopathics, Supplements, Chiropractors, Massage, Colonic Therapists, and some other really weird alternative therapies. When you are that ill you try almost anything.
After much research I came to believe that the massages and colonics probably saved my life. The massage moved the toxins and the colonics took them out of my body. Later on a doctor told me it was probably the only thing that kept me alive for many years.
I think I had Chronic Fatigue and Fibromyalgia but I've never found out what caused it or how I got it. I don't know if I had RA or not but I could barely sit down, stand up, lie down or get up. My husband would have to help me sit down and get up from the stool, chair or bed. My knees, one of my fingers in my right hand, my left elbow, and right shoulder hurt so bad I could barely function. I didn't go anywhere except to the doctor's office and I didn't do anything. I didn't have a life and I can't even stress that part enough. I said all that to give you the background that I was VERY sick and really hurting.
Then one day a friend of mine gave me some information about glyconutrients. First of all I'm not selling anything!! You can either go to your local health food store and buy them or google to find companies that sell the product.
Your body uses over 200 sachharide sugars (chemical carbohydrates). They work with various parts and organs of your body. The 8 chemical carbs in the Glyconutrients are the specific ones that deal with the immune system.
Within 2 weeks of taking the glyconutrients I noticed a difference. I felt a little better and not so desparetly ill. I was still ill but I didn't feel like I would die every day. Little by little I began getting my life back. My energy came back and the pain subsided and I was able to start doing things I did before I became ill. I could clean my closets, vacummed, swept, cooked, did laundry in 1 day, did the grocery shopping again. My husband got HIS life back again too. Before I got ill we did everything together, then when I got sick he had to do almost everything. Now we do things together again. Within 6 months I led a pretty normal life and within a year no one would have known I was so despartely sick for so long.
Now, I am going to school to become a massage therapist, an EFT practitioner, a breathing coach and a Nutritionist. I scrapbook, do beading, teach Hebraic dance and exercise. My husband and I do stained glass work together. I cook, clean, vacuum, dust, grocery shop and am able to spend time with my grandchildren again. We have a fellowship in our home now and I run a Recovery Program for women who are addicts, abused and codependents. I travel and have a wonderful life again.
I do have to be faithful in taking the glyconutrients to feel good. To me it's no different than the diabetic taking their insulin or people who have allergies having to take their allergy medicine. If I take the glyco's I stay healthy and have energy. If I don't then I feel sick and my fatigue comes back. The doctors were never able to diagnose what was wrong with me. They wanted to help me but they didn't know what was wrong with me or how to help me.
If you are interested in learning about the immune system and how the glyconutrients work with it then you can google or go to e-bay and do a search for a CD called, "Sweet Language of Life". It explains the immune system, how it functions and how and why it breaks down when it doesn't have what it needs. It explains what glyconutrients do for the immune system. It's one of the best health DVDs I've ever seen.
Good luck and I hope you at least try the glyconutrients. Do your research to find a reputable company - as with any product you have your shisters. And Glyconutrients are not a one size fits all product - you have to find what works for you. Some people can take a little and see results in a very short time. For others it takes more product, and/or more time. You have to work with it to see what works for you. I take 2 teaspoons a day - 1 in the a.m and 1 in the p.m. - every body is different so you have to find what works for yours.
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Nottawayfer
Will you still have to take the methotrexate as well? I thought Remecade was a once monthly or even bimonthly drug. I have a co-worker who has a daughter on it. She has Crohn's disease. She goes in monthly for the infusion.
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2life
Edi...thank you for that post!! If you don't mind could you e mail any product information about
glyconutrients?!! This is the first I have heard of them!!!
And EFT... I love it!!! As Gary Craig says.... tap on/for anything!!!!
and Chas.... you are my hero!! that was a magnificent post regarding alternative therapies! I realize that these posts are old.... but thanks!!
Jdono44@hotmail.com
Janet
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Belle
2Life, please change that e-mail address to have spaces or the word "at" for @ to avoid spammers from flooding you. :)
Edi, I'd also like some info on the glyconutrients and HIGHLY recommend EFT as well as Energy Medicine info from Donna Eden.
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Edi
Janet and Belle,
Janet I sent you info to your e-mail addy you supplied. Belle I sent you info to your message center here. Like I said I don't sell it but I provided you info of where you can go to get product information on glyconutrients and phone #s to call to order. If you have any problems then message me or e-mail me back. Good luck and if you decide to get it let me know how you are doing on it.
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pond
MD's do what they thnk will work.
that does not mean it will work and the patient recovers.
it is also a wait and see method. and try this and that .
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